The Society of Pediatric Cardiac Nurses

 







Adult Congenital Heart Disease (ACHD) Care Resources

This document contains a collection of bedside resources for the practitioner who is providing bedside care for adults with congenital heart disease (CHD). These patients may be hospitalized in either an adult or pediatric facility. The Care Resources include problem interventions and summaries of congenital heart defects with surgical interventions/repairs and potential/actual complications that may be encountered in adults who have grown up with CHD. These resources have been developed by a group of advance practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care. Each topic in this outline may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for further investigation on the care or problems that are presented by the ACHD patient.

The advanced practice nurses who have participated in the development
of these Care Resources include:

Chairperson  
  Mary Rummell, MN, RN, CNS, CPNC
Clinical Nurse Specialist, Pediatric Cardiology
Co-chairperson  
  Sandy Staveski, MS, RN, PNP, CNS, CCRN
Cardiovascular ICU Nurse Practitioner

Loren Brown, BSN, RN, CCRN
Clinical Nursing Educator, Cardiovascular Catheterization Lab

Diana Arias, MSN, ARNP, FNP-C, CPN
Clinical Specialist, Cardiac Care Center

Kathryn Barrett, NP-C, RN, CCRN
Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Louise Callow RN, MSN, CPNP
Pediatric Cardiac Surgery Nurse Practitioner

Andrea Frederick, RN, NP
Nurse Practitioner, Adult Congenital Cardiology

Annette Haynes, MS, RN, CNS, CCRN
Cardiology Clinical Nurse Specialist

Joylyn Headings, FNP, RN, CCRN
Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Lindsey Katzmark, MSN, RN, APNP
Nurse Practitioner, Adult Congenital Heart Disease Program

Jo Ann Nieves, MSN, CPN, ARNP, PNP-BC
Nurse Practitioner, Cardiology

Nancy Rudd, MS, RN, CPNP-AC/PC
Nurse Practitioner, Pediatric Cardiology & Adult Congenital Heart Disease Program

Julie Shinn, NP, RN
Nurse Practitioner, Adult congenital Cardiology

Margaret Schroder, RN, PNP-BC
Nurse Practitioner, Cardiovascular Surgery

 

 

Illustrations for the documents on congenital heart defects were provided by PedHeartResource. http://www.HeartPassport.com.  © Scientific Software Solutions, 2010. We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair. This link will take you to their website.

Links to additional electronic resources in the care of adults with congenital heart disease include:

American Heart Association: ACC/AHA 2008 Guidelines for the Management of Adults With Congenital Heart Disease: http://circ.ahajournals.org/content/118/23/e714

Adult Congenital Heart Association: www.achaheart.org

Pregnancy information on care for women who have congenital heart disease: http://www.heartdiseaseandpregnancy.com/

 

Adult Congenital Heart Disease (ACHD) Care Resources

Table of Contents
(click on topic to access documents)
 

 Problems:  
 Anticoagulation with Warfarin Loren Brown
 Arrhythmias in ACHD Annette Hanes
 Comfort Management Sandy Staveski
 Discharge Guidelines Margaret Schroeder
 Postoperative Glycemic Control Mary Rummell
 Pulmonary Hypertension – with  citations Jo Ann Nieves, Annette Haynes
 Pulmonary Hypertension – without citations Jo Ann Nieves, Annette Haynes
 Pulmonic Ventricular Dysfunction Louise Callow
 Pregnancy and Congenital Heart Disease Andrea Frederick, Annette Haynes
   
Congenital Heart Defects:  
 Atrioventricular Septal Defects Mary Rummell
 Coarctation of the Aorta Jo Anne Nieves, Diana Arias
 Congenitally Corrected Transposition of the Great Arteries Mary Rummell
 Ebstein’s Anomaly Andrea Frederick
 Hypoplastic Left Heart Syndrome Louise Callow
 Tetralogy of Fallot Andrea Frederick
 Tricuspid Atresia Louise Callow
 Transposition of the Great Arteries Mary Rummell
 Truncus Arteriosus Sandra Staveski
   
   

Please let us know if these documents assist you in your care of the adult patient with congenital heart disease.  Email your comments / suggestions to .
 

 


 

 

Copyright©2011 SPCN