SPCN - The Society of Pediatric Cardiovascular Nurses

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Adult CHD Care Resources

This document contains a collection of bedside resources for the practitioner who is providing bedside care for adults with congenital heart disease (CHD). These patients may be hospitalized in either an adult or pediatric facility. The Care Resources include problem interventions and summaries of congenital heart defects with surgical interventions/repairs and potential/actual complications that may be encountered in adults who have grown up with CHD. These resources have been developed by a group of advance practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care. Each topic in this outline may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for further investigation on the care or problems that are presented by the ACHD patient.

The advanced practice nurses who have participated in the development of these Care Resources include:

Chairperson
Mary Rummell, MN, RN, CNS, CPNC
Clinical Nurse Specialist, Pediatric Cardiology
Co-chairperson
Sandy Staveski, MS, RN, PNP, CNS, CCRN
Cardiovascular ICU Nurse Practitioner

Members
Loren Brown, BSN, RN, CCRN
Clinical Nursing Educator, Cardiovascular Catheterization Lab

Diana Arias, MSN, ARNP, FNP-C, CPN
Clinical Specialist, Cardiac Care Center

Kathryn Barrett, NP-C, RN, CCRN
Nurse Practitioner, Pediatric Cardiac Intensive Care UnitLouise Callow RN, MSN, CPNP
Pediatric Cardiac Surgery Nurse Practitioner

Andrea Frederick, RN, NP
Nurse Practitioner, Adult Congenital Cardiology

Annette Haynes, MS, RN, CNS, CCRN
Cardiology Clinical Nurse Specialist

Lindsey Katzmark, MSN, RN, APNP
Nurse Practitioner, Adult Congenital Heart Disease Program

Jo Ann Nieves, MSN, CPN, ARNP, PNP-BC
Nurse Practitioner, Cardiology

Nancy Rudd, MS, RN, CPNP-AC/PC
Nurse Practitioner, Pediatric Cardiology; Adult Congenital Heart Disease Program

Julie Shinn, NP, RN
Nurse Practitioner, Adult congenital Cardiology

Margaret Schroder, RN, PNP-BC
Nurse Practitioner, Cardiovascular Surgery

Illustrations for the documents on congenital heart defects were provided by PedHeartResource. http://www.HeartPassport.com.  © Scientific Software Solutions, 2010. We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair. This link will take you to their website.

Links to additional electronic resources in the care of adults with congenital heart disease include:

  • American Heart Association: ACC/AHA 2008 Guidelines for the Management of Adults With Congenital Heart Diseasehttp://circ.ahajournals.org/content/118/23/e714
  • Adult Congenital Heart Association: www.achaheart.org
  • Pregnancy information on care for women who have congenital heart disease: http://www.heartdiseaseandpregnancy.com/

Adult Congenital Heart Disease (ACHD) Care Resources

Table of Contents

(click on topic to access documents)

Problems:

Anticoagulation With Warfarin, Loren Brown (pdf - 208.8 KB)

Arrthymias in ACHD, Annette Hanes (pdf - 86.0 KB)

Comfort Management, Sandy Staveski (pdf - 70.9 KB)

Discharge Instructions, Margaret Schroeder (pdf - 63.6 KB)

Eisenmenger Syndrome, Nancy Rudd, Lindsey Fox (pdf - 177.1 KB)

Postoperative Glycemic Control, Mary Rummell (pdf - 48.2 KB)

Pregnancy And Congenital Heart Disease, Andrea Frederick, Annette Haynes (pdf - 113.6 KB)

Pulmonary Hypertension, Jo Ann Nieves, Annette Haynes (pdf - 141.9 KB)

Pulmonic Ventricular Dysfunction, Louise Callow (pdf - 56.9 KB)

Congenital Heart Defects:

Atrioventricular Septal Defects, Mary Rummell (pdf - 247.4 KB)

Coarctation Of The Aorta, Jo Anne Nieves, Diana Arias (pdf - 275.1 KB)

Congenitally Corrected Transposition Of The Great Arteries, Mary Rummell (pdf - 236.1 KB)

Ebstein's Anomaly, Andrea Frederick (pdf - 100.5 KB)

Hypoplastic Left Heart Syndrome, Louise Callow (pdf - 330.6 KB)

Tetralogy Of Fallot, Andrea Frederick (pdf - 159.8 KB)

Transposition Of The Great Arteries, Mary Rummell (pdf - 302.9 KB)

Tricuspid Atresia, Louise Callow (pdf - 337.8 KB)

Truncus Arteriosus, Sandra Staveski (pdf - 151.9 KB)

Please let us know if these documents assist you in your care of the adult patient with congenital heart disease.  Email your comments / suggestions to .