The aim of the Comprehensive Single Ventricle Program is to improve survival and optimize functional outcomes of children and young adults with single ventricle physiology from the western US by establishing a center of excellence at Lucile Packard Childrens’ Hospital Stanford for comprehensive, longitudinal care of single ventricle patients.
The Comprehensive Single Ventricle Program will encompass clinical care, quality improvement , and research related to single ventricle patients. The clinical program is an interdisciplinary comprehensive care model in the outpatient cardiology clinic setting, including cardiac neurodevelopmental services and collaboration with other pediatric sub-specialists. The initial focus of quality improvement will be Phase 2 NPCQIC, the national learning network to improve outcomes in infants with HLHS. The initial aim of the research arm is to develop a cohesive, funded platform for single ventricle research at Stanford.
Program Director Comprehensive Single Ventricle Program
Nurse Practitioner or Physician Assistant (1.0 FTE)
Full-time nurse practitioner or physician assistant to launch and manage the longitudinal outpatient program for patients with single ventricle physiology palliated with Glenn or Fontan procedures. In collaboration with the Medical Director, this staff member will help lead a multidisciplinary team providing comprehensive care focused on optimizing outcomes and quality of life for single ventricle patients beyond infancy. This will include cardiac neurodevelopmental evaluations for all patients as well as other subspecialty services as needed. The nurse practitioner or physician assistant will facilitate care coordination among Lucile Packard Children’s Hospital Stanford, community cardiologists, and other care providers. The holder of this position will participate in developing best practices as well as ongoing quality improvement efforts on behalf of this population to assess the impact on overall outcomes. In this leadership position, he or she will be involved in strategic planning and further development and expansion of all aspects of the Comprehensive Single Ventricle Program.