Congenital Heart Defect Resources

This webpage contains a collection of bedside resources for the practitioner who is providing bedside nursing care for children and adults with congenital heart disease (CHD). These patients may be hospitalized in either an adult or pediatric facility. These Care Resources include summaries of congenital heart defects with surgical interventions/repairs and potential/actual complications that may be encountered in infancy, childhood and during adulthood with CHD. These resources have been developed by a group of advance practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care. Each topic in this outline may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for caring with children and adults with CHD. Every effort has been made to provide the most current, up-to-date practice recommendations however institutional differences may occur.

Illustrations for the documents on congenital heart defects were provided by PedHeartResource.  © Scientific Software Solutions, 2010. We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair. This link will take you to their website.

Dorothy M Beke, MS, RN, CPNP-PC/AC
Clinical Nurse Specialist, Cardiac Intensive Care Unit
Mechanical Circulatory Support Resource, Cardiac Intensive Care Unit
Boston Children’s Hospital Boston
Boston, Massachusetts

Mary Rummell, MN, RN, CNS, CPNP, FAHA
Clinical Nurse Specialist, Cardiac Services
Oregon Health and Science University
Portland, Oregon

Sandy Staveski, PhD, RN, CPNP-AC/PC, CNS, CCRN
Nurse Scientist, Research in Patient Services, Heart Institute
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio